Skip to content

NEOCYST

  • Deutsch
  • WHAT IS NEOCYST?
    • BACKGROUND
    • GENERAL INFORMATION
    • GOALS
    • IMPLEMENTATION
    • NEOCYST PROJECTS
      • P1 – CENTRAL ORGANIZATION
      • P2 – CLINICAL REGISTRY AND INTERNET PLATFORM
      • P2.3 – Neuropsychological assessment of NEOCYST patients
      • P3 – GENETICS
      • P4 – STANDARD OF CARE GUIDELINES
      • P5 – TRANSLATIONAL RESEARCH PROJECTS
      • P6 – ProtCyst
      • P7 – BIOBANK
  • MEDICAL BACKGROUND
    • OF CILIA AND CYSTS
    • NEPHRONOPHTHISIS
    • NEPHRONOPHTHISIS AND EXTRARENAL SYMPTOMS
      • JOUBERT SYNDROME
      • SENIOR – LØKEN SYNDROME
      • CONGENITAL OCULOMOTOR APRAXIA TYPE COGAN II (COMA)
      • JEUNE ASPHYXIATING THORACIC DYSPLASIA
      • MECKEL – GRUBER SYNDROME
      • ELLIS van CREVELD SYNDROME
      • MAINZER – SALDINO SYNDROME
    • BARDET – BIEDL SYNDROME
    • HNF1ß – NEPHROPATHY
    • ARPKD
  • GUIDELINES
    • Consensus statement: imaging of kidney cysts and cystic kidney disease in children
    • International consensus statement: diagnosis and management of autosomal dominant polycystic kidney disease in children and young people
    • Clinical practice recommendation: perinatal diagnosis, management, and follow-up of cystic renal disease
  • NEOCYST CONSORTIUM
    • UNIVERSITY OF MÜNSTER
    • UNIVERSITY OF COLOGNE
    • HANNOVER MEDICAL SCHOOL
    • HUB – HANNOVER UNIFIED BIOBANK
    • UNIVERSITY OF DUISBURG – ESSEN
    • UNIVERSITY HOSPITAL FRANKFURT
    • Center for Human Genetics, Mainz
    • UNIVERSITY HOSPITAL GIESSEN – MARBURG
    • UNIVERSITY HOSPITAL HEIDELBERG
    • UNIVERSITY OF FREIBURG
  • PARTICIPATING CENTRES
  • LINKS & PATIENT ORGANISATIONS
  • PUBLICATIONS
  • DOWNLOAD & FORMS
  • CONTACT
  • LEGAL DISCLOSURE

➤ REGISTRY ACCESS

(login credentials required)

LOG IN

Please log into the site.

Federal Ministry of Education and Research
Gesellschaft für Pädiatrische Nephrologie

TheRaCil Project: Advancing Therapies for Pediatric Renal Ciliopathies

October 23, 2023October 23, 2023

NEOCYST Partner from Heidelberg, Cologne, Mainz and Münster are part of the newly established international research consortium TheRaCil : Therapies for Renal Ciliopathies | TheRaCil | Project | Fact sheet | HORIZON | CORDIS | European Commission (europa.eu).

Presse-Release-TheRaCil-Final-version-1Herunterladen
Written by: Admin

Post navigation

Patient videos: Bardet-Biedl-Syndrome

NEWS

  • TheRaCil Project: Advancing Therapies for Pediatric Renal Ciliopathies
  • Patient videos: Bardet-Biedl-Syndrome
  • NEOCYST funding extended for another 3 years!
  • Prof. Franz Schaefer won prestigous Black Pearl Award 2022!
  • Dr. Jens König and Mareike Dahmer-Heath win the 2021 Peter-Foundation research award!
  • Dr. Jens König talks about NEOCYST in the +3 magazine (Süddeutsche Zeitung)
  • A mascot for NEOCYST

CALL FOR DONATIONS

Luna´s call to support hereditary ciliopathy research:

https://lezfez-luna.de/

PATIENT DAYS 2022

Cilia 2022: Patient´s Day in Cologne

ARPKD, HNF1B and nephronophthisis patient day: 24.09.2022

HNF1B and Nephronophthisis patient day: 26. March 2022

NEWSLETTER

Research for Rare: R4R Newsletter 12/2021

Newsletter 2021

BBS-Familientag in Essen 2019

Münsteraner Zystentag 2018

Newsletter 07_2018