NEOCYST is a multicenter, interdisciplinary network of clinicians and scientists exploring early onset cystic kidney diseases.
Hereditary cystic kidney diseases are among the most important causes of chronic renal failure in childhood. A high phenotypical and genetic variability as well as overlapping clinical symptoms hamper an early diagnosis and an individual prognosis of the expected disease course.
The goals of NEOCYSTare to increase the knowledge on the epidemiology, the phenotypical spectrum, the underlying genetic and pathophysiological mechanisms as well as the individual prognosis of early onset cystic kidney diseases and thereby to improve the clinical management and counselling of affected patients.
The NEOCYSTproject is financed by the Federal Ministry of Education and Research (Bundesministerium für Bildung und Forschung, BMBF) and supported by the German Society of pediatric nephrology (GPN).